Care

 

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Actions that aim to: develop, review or improve care models; or support individuals with dementia and those around them to experience a better quality of life. Including but not limited to:

  • Developing and sharing models of care that support individuals with dementia and those around them to experience a better quality of life.
  • Adopting indicators and other evaluating methods that aim to measure and monitor dementia care services or policies.
  • Facilitating the development of innovative care models, harnessing the potential of community, technology and therapy.

 

COMMITMENTS
Country / Organisation Pledge
Austria The Austrian Dementia Report 2014 has a major focus on dementia care. The report covers aspects of medication and other therapies, nursing care, support and specialised care facilities as well as structure of care (e. g. integrated care). Each field covered in the report is characterized by its own challenges. Encountering those in an adequate manner while taking into account changing societal parameters as well as the needs of people with dementia and their relatives will be in the focus of future interest.
Canada OECD supported discussions to link big data initiatives on population/healthcare data between UK and Canada: the Dementia Platform (UK) and CCNA (Canada).

US-Canada linkage between two major initiatives (GAAIN/LORIS) to provide a wealth of open-source biomedical data for the community.

Cuba Implement and evaluate package of care for people with dementia and frail or dependent older people.
Czech Republic Creating indicators for the quality of care for people with dementia and a system of quality certification with the Czech Alzheimer’s Society, Vazka. The system has already certified more than 30 care providers in the field of health and social care. These activities are included in the P-PA-IA strategy, the National Alzheimer’s Plan for the Czech Republic.
Dominican Republic Carers of people with dementia should be included as partners in any care plan or strategy for dementia. Particularly, carers are an at risk population for depression and physical illnesses.
Flanders Creating specific structures for people with young onset dementia. Training of reference persons dementia in home care and residential care facilities (turning knowledge into practice).

A transition plan on dementia care focusing on psycho-education for family caregivers, creating and enhancing dementia awareness with volunteers and professionals: social workers of sickness funds, home care nurses, other professional caregivers including home care nurses and pharmacists.

Greece As part of the national dementia action plan in Greece, there are aims to improve support and care available at home and residential and institutional care. There are also plans to work on the integration of care pathways and coordination of social and medical care.

Training for healthcare professionals; and to create support services for carers and families.

Indonesia As part of the National Plan, Indonesia is taking a long term prevention and promotion approach, based on cognitive stimulation long life cycle.

To ensure accessibility to and quality of services.

Japan Japan, based on long-term experiences of dementia care, will contribute to the world by sharing systems such as training for care practitioners in Asian nations and beyond.

Japan will also explore the potential of new care devices using ICT and robotics, and consider sharing accumulated knowledge and experiences of dementia care.

Mexico Development of a National Plan for Dementia focusing on improving care. In which, Mexico insist on the need for training, support and orientation for carers; and the development of recommendations for the day care centres.
Sweden Quality register on Behavioural and Psychological Symptoms in Dementia – BPSD
The BPSD (behavioural and psychiatric symptoms in dementia) register is an effective tool in improving care for persons with dementia. The use of the tool can reduce the symptoms of BPSD in a dramatic way. An audit of participating units shows that the registry contributes to reduce the frequency and severity of BPSD, reduction of medication use and allow health professionals to work in an evidence-based manner and evaluate their care interventions.Swedish study on ageing and care – SNAC
SNAC was established in 2001. The basic function is focused on following health and use of medical and social care in the population aged 60 and above in four geographical areas in Sweden. The large amount of data is an important source for research and for planning purposes. The data form this longitudinal study has already been of great use for researchers.Senior Alert quality register
Care prevention also means that injuries in healthcare should be avoided and that all patients should be guaranteed a safe treatment on equal terms. To achieve this preventive approach have to be influenced by structure, systematics and comparison of results. The preventive care process includes risk assessments and proactive actions. The Senior Alert quality register covers five areas which are linked to each other, dental status, malnutrition, fall injuries, pressure wounds and incontinence.
The Netherlands The Dutch Ministry of Health published an action plan to improve the care in nursing homes in order to achieve as high quality of life as possible for the people living in nursing homes. Execution will start in 2015. The Deltaplan on Dementia aims to improve care for people with dementia by implementing the Dementia Care Standard, a description of the necessary, coordinated care from first symptoms till decease. This implementation is expected to start later in 2015.
The Scottish Government with ICHOM Development of outcomes framework for establishing standards in care and support.
United Kingdom The Prime Minister’s Challenge on Dementia
Increase the use of dementia friendly criteria across health and care settings. Reduce the levels of inappropriate admissions to hospital for people with dementia. Improve the experience and support for carers of people with dementia including in the workplace.Post Diagnostic Support
Develop and deliver meaningful care to support individuals following a dementia diagnosis.
Develop linguistically and culturally appropriate diagnostic tools to support increased levels of diagnosis within Black. Asian and Minority ethnic groups.
Increase the opportunities for people with dementia to be able to live longer in their own homes when it is in their interest to do so.Practice Guidance on Dementia for Social Workers
The Chief Social Worker for adults in England is developing with the College of Social Work, guidance for social workers to enable them to provide excellent care and support for people with dementia and their carers, including where to go for advice and practical support. This work should be in place by spring 2015.
Alzheimer’s Disease International (ADI) ADI World Alzheimer Report 2016 on evidence based care interventions and ADI and WHO paper on caregiving March 2015.
Age International A programme that aims to develop a sustainable model of dementia awareness-raising and support to community care that will reduce the social and economic impact and the violence and human rights abuses that are associated with dementia, in sub-Saharan Africa. This programme will integrate four areas of work: improved community awareness of dementia to reduce stigma; improved capacity of health and care systems to care for people with dementia; improved support for carers and families; and protection of human rights and reduction of violence and discrimination against older people.
The Alzheimer Society of Ireland (ASI) ASI is the leading dementia specific service provider in Ireland. ASI work across the country in the heart of local communities providing dementia specific services and supports. ASI currently have 3,000 clients. Our services and supports include 36 home care teams, 52 day centres, 2 respite centres, 50 social clubs and Alzheimer Cafes, 7 Dementia Advisers, 6 cognitive stimulation therapy programmes, family support groups and family education programmes. We also operate a national helpline which supported 4,000 people in 2014.

The ASI has 7 Dementia Advisers throughout Ireland. Dementia Advisers work with people with dementia and their families and carers to provide a highly responsive and individualised information and signposting service. They provide people with information and advice throughout their journey with dementia, help people to connect with dementia supports and services, and help communities to be more dementia friendly. This service was launched in 2014 and supports over 400 clients.

Alzheimer’s and Related Disorders Society of India (ARDSI) Run long-term (for advanced stage people living with dementia-PWD) and short term services, build capacities of family caregivers and raise professional cadres through capsuled trainings to meet the demands for care giving, extend home based counselling for effective management of Dementia and care through helpline services.
Alzheimer’s Society Global Alzheimer’s and Dementias Action Alliance (GADAA)

GADAA was set up at the 2014 World Health Assembly. It brings together international NGOs committed to using their reach and influence to ensure that people with dementia and their carers are no longer the victims of stigma and discrimination and can be better provided with care and support. All international NGO’s are invited to join GADAA, organisations of people with dementia and their carers are also included.

Alzheimer Venzuela Training Plan on Alzheimer’s and other dementias, aimed at medical staff, care staff, family members, caregivers and community.
Centre for Ageing and Development Research in Ireland (CARDI) CARDI Commissioned Research: Approaches to dementia care in Ireland, North and South, due for completion September 2015.
Central American Multidisciplinary Confederation of Alzheimer’s (COMCAEDA) Developing models of memory centres for Central America and the Caribbean.
The European Commission EU Commission is working with member states on good practice models in dementia, including the forthcoming Joint Action on diagnosis, prevention and improved care and dementia-friendly communities.
The Global CEO Initiative on Alzheimer’s Disease Global Care Standards
Care for those who have the disease now by setting international goals for care delivery and patient outcomes so that each nation can learn from others the most effective actions to take action to address Alzheimer’s. The initial call for this type of approach was made at the December 2013 G8 Dementia Summit and was immediately embraced by key stakeholders. In 2014, CEOi took a step forward, with AARP, by getting broad geographical input and diverse subject matter expertise to define an initial set of global foundational goals. Moving into 2015, we will run a workgroup process that will refine our initial set of goals, as well as define key measurements to understand progress towards the goals. Following the initial 6-8 month process, the workgroup being led by ICHOM, will begin to engage national and international organizations to ensure that the goals drive improvements in care systems to support the millions of people living with Alzheimer’s disease and their loved ones who provide care.
Greek Association of Alzheimer’s Disease and Relative Disorders Integrated Care for patients with dementia and their carers in Greece, through the Panhellenic Federation of Alzheimer’s Disease and Related Disorders.
The aim of our project is to bring together inputs, delivery, management and organization of services related to diagnosis, treatment, care, and health promotion for patients with dementia in North Greece. Our goal is improvement of our services in relation to access, quality, user satisfaction and efficiency. The services we provide in our Alzheimer’s Day Care centers will be provided in the framework of the official health system in collaboration with related organizations. The thematic area of our project is care; the best possible care for patients with cognitive problems and their carers. From the beginning of 2016 we will put in practice our full program. The results of our effort and our experience will be a useful tool to spread this project throughout Greece since 2017. There are 13 Prefectures in Greece and we are in contact with more of them as Panhellenic Federation of Alzheimer’s Disease and Related Disorders which was established in 2007 with 33 branches all over Greece.
Young Leaders Innovative Standards and Practices
In the global and local efforts to develop standards of care, we will serve as liaisons to facilitate open dialogues between regional and national governments, community organizations, persons with dementia and their caregivers, and experts in care delivery to translate best practices. We will target the disproportionate burden of dementia on women as patients and caregivers to improve coordinated care. We also consider the use of mobile technology as an important tool in improving access to healthcare, supporting providers and caregivers, and monitoring longitudinal changes. We will convene technical, health, and policy experts to develop a set of top ten recommendations for dementia-friendly Information Communication Technology devices and applications to help persons with dementia live independently.

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