Research

Dementia Research

Actions that aim to: increase research, or improve the quality of research into dementia related subjects. Including but not limited to:

  • Establishment of mechanisms for coordinated research efforts globally, keeping in mind the strategic research priorities.
  • Sustaining or improving funding into research into dementia, encourage and facilitate dementia research.
  • Facilitate access to new sources of finance for dementia research.
  • Support increased participation in dementia research and trials.
COMMITMENTS
Country / Organisation Pledge
Australia Establishment of an International Research Network on Dementia Prevention, to coordinate research efforts in dementia prevention and risk reduction. The Network would exchange information with European and North American Groups but develop its own resources, in particular online tools, and take on a broader geographical remit for the Asia Pacific region.The primary focus would be on “non-pharmacological” particularly “lifestyle” and self-managed interventions with online support programs but it would also have a secondary interest in prevention involving drugs and treatment programs. Australia’s National Health and Medical Research Council, through its National Institute for Dementia Research would host and lead this research commitment.
Austria The Austrian Dementia Report 2014 uses several research methods. Each field researched in the report is characterized by its own challenges. Encountering those in an adequate manner while taking into account changing societal parameters as well as the needs of people with dementia and their relatives will be in the focus of future interest.
Canada Launch of the Canadian Consortium on Neurodegeneration in Aging (CCNA) brings together 20 research teams (over 350 researchers) from across Canada to focus efforts on preventing and delaying the onset of dementia, as well as improving the lives of people already affected (investment of $31.5M with synergistic investment in Quebec and Ontario of $24M, for a total of $55M). The CCNA is the national and international hub of the CIHR Dementia Research Strategy. This is being undertaken by the Canadian Institutes of Health Research.
Canada and Israel Joint Canada-Israel Health Research Program
Canada’s International Development Research Centre (IDRC), the Canadian Institutes of Health Research (CIHR), and the Israel Science Foundation (ISF) announce the launch of a Joint Canada-Israel Health Research Program.This program will provide funding for Canadian and Israeli researchers to assemble world-class research teams working in cutting-edge areas of biomedical science with a primary focus on brain research. Subsequent calls may also include areas of common interest across other organs and diseases (e.g., the immune system and cancer), and topics such as cell signalling and novel potential treatments of relevant disorders.
Flanders Investment by the VIND network of researchers program: the researchers will reinforce each other with their complementary knowledge and exchange their results. The network will provide valuable new insights about how we can all reduce the risk by adjusting our lifestyle and environment. The dementia network will also focus on early diagnosis, prevention, counselling and support for patients, family and caregivers.
France Plan for neurodegenerative disorders.
The French plan for neurodegenerative disorders will cover research, care and prevention. The research part of the plan will encourage the use of existing large population cohorts to identify risk factors for neurodegenerative disorders including dementia. Cohorts of patients will also facilitate identifying the factors involved in the evolution of the disease; and link this with the identification of biomarkers.
Germany The Federal Ministry of Health installed 2010 a health care research programme “future-workshop on dementia”, in which projects are funded that concentrate on the support of caring relatives and on regional dementia networks. The aim is to identify success factors in the build-up of regional dementia networks and to implement such networks on a permanent basis.The future-workshop on dementia is a collaboration of the Federal Ministry of Health with a various number on scientific research institutions like Universities as well as cities, local dementia alliances and NGOs. The Federal Government funds the implementation of scientific knowledge into pilots projects for the support of care-giving relatives and regional networks in the “Future Workshop on Dementia” until 2015.
The Federal Ministry of Education and Research supports dementia research by funding the German Center for Neurodegenerative Diseases and the Joint Programme – Neurodegenerative Disease Research
Greece As part of the national dementia action plan in Greece, there is an aim to establish research programmes that embrace innovative technologies.
Indonesia Research and development on cognitive aspects and Dementia.
Ireland Develop a €4.5million collaborative research investment programme in dementia research aligned with the priorities in the Irish National Dementia Strategy. This includes: a €1.75m targeted call for applied research projects and/or intervention studies in dementia, with a particular emphasis on prevention and care; support for PhD students in dementia to participate in a national structured programme in health services research and population health research; support for post-doctoral fellows to work on dementia projects as part of interdisciplinary team call announcement for a Research Professorship in Dementia funding for an all-island Research & Practice Network in Dementia. This will run from 2014 to 2019.Participation in the Centres of Excellence in Neurodegeneration (CoEN) initiative which is based on a joint programme between Science Foundation Ireland and Health Research Board with funding bodies from seven other countries. The overall aim of the initiative is to build collaborative research activity in neurodegeneration research across borders. Science Foundation Ireland, Health Research Board, plus funding agencies from 7 other countries: Canada, Spain, Belgium, Slovakia, Germany, Italy and the UK.
Japan Japan will launch a prospective cohort study of high quality and high efficacy and with tens of thousands of people to identify the personal risk factors and protective factors for developing dementia, and implement a risk reduction strategy through possible collaborative research with the world.
The Netherlands The Netherlands have a national dementia research programme ‘Memorabel’. This is part of the national ‘Deltaplan for Dementia’ and the national implementation of the JPND Research Strategy. The Netherlands Organisation for Health Research and Development (ZonMw) is in charge of the execution of the programme, which started 2013 and ends 2020. The estimated total budget is € 180 million, in public-private partnership. For 2013 – 2016 the Dutch government invested € 32.5 million in the programme.The Dutch research programme ‘Palliantie’ focuses on research to improve palliative care and advanced care planning. This programme includes palliative care for people with dementia. . The Netherlands Organisation for Health Research and Development (ZonMw) executes of the programme, which started 2015 and ends 2020. It is government funded with a total budget of € 51 million.
United Kingdom Promote the ‘Join Dementia Research’ campaign to share information on research opportunities for people with a new diagnosis of dementia.
Public Health England will also continue to build evidence base for risk reduction through stimulation of research and translation of evidence into practice.
As part of the Prime Minister’s Challenge on Dementia there is an aim to work towards recruiting 10% of patients into clinical trials.
South Korea Strengthening International Cooperation on Dementia Research
To aim is to increase cooperative endeavors on an international level such as through the Korea-UK Alzheimer’s disease Research Consortium and neuro-degenerative disease research.
Sweden Sweden has an extensive research into dementia and other neurodegenerative diseases. The network Swedish Brain Power covers a research program including the entire chain from basic biomedical research in diagnostics, treatment, care and diligence. This unique multidisciplinary collaboration has made the Swedish Brain Power to an international model for other research networks.The Swedish Dementia Centre was established in 2008 as a hub of a national network for research and development units. The commission is to collect structure and disseminate knowledge about dementia and dementia care, compile evaluations and research results. One important function is to facilitate translation of research and implementation of new knowledge into nursing and care, interventions and social policy and useful tools for daily work.
Alzheimer’s Association Explore and expand collaborations between academic, industry, government and non-governmental agencies.Facilitate annual mechanism for benchmarking progress during the Alzheimer’s Association International Conference, the largest convening of dementia scientists in the world.
Alzheimer’s and Related Disorders Society of India (ARDSI) ARDSI has been part of 10/66 research. ARDSI is also actively engaged in research in evolving strategies for Dementia Friendly Communities on a pilot basis for mainstreaming in more cities. Person centred care research is being contemplated on effective therapies. In addition, integrating dementia care with geriatric care shall remain explored.
Alzheimer’s Disease International (ADI) ADI: Women and Dementia report April 2015.
Alzheimer’s Society The Alzheimer’s Society research programme.
Alzheimer’s Society is committed to funding at least £100m of new research in the next decade, across cause, cure, care and prevention of all forms of dementia.Doctoral Training Centre Network (DTC).
Alzheimer’s Society have funded a DTC network of 8 academic centres based in the UK which offer 55 PhDs in dementia research over the next two years.The DTC’s are part of Alzheimer’s Society Dementia Research Leaders capacity building programme.
The Alzheimer’s Society of Ireland (ASI) The ASI supports national research on dementia, currently co-funding research on the health and well-being of spousal caregivers of people with dementia in Ireland. The ASI supports early career researchers by co-funding a number of PhD students. The ASI is prioritising the involvement and engagement of people with dementia in all aspects of research by facilitating a research subgroup of the Irish Dementia Working Group.
Centre for Ageing and Development Research in Ireland (CARDI) CARDI Leadership programme award: Impact of stress on neurocognitive and cardiovascular health of older people in Ireland, 2014 – 2017.CARDI Grant Programme Award: Deprivation and Cognitive Dysfunction, published in 2014.

CARDI Event: Future directions and collective strengths in dementia research in Ireland, North and South. CARDI, in collaboration with the Irish Network for Research in Dementia and Neurodegeneration (INRDND), Alzheimer’s Society (NI) and the Alzheimer’s Society of Ireland hosted a networking and information event entitled ‘Future directions and collective strengths in dementia research’ on Friday 12 December 2014.

CARDI Event: International Training Programme on Ageing CARDI, in association with the Irish Network for Research in Dementia and Neurodegeneration (INRDND), Alzheimer’s Society (NI), Alzheimer’s Society of Ireland and the Canadian Institutes of Health Research Institute of Aging will host a three day International Training Programme on Ageing on 22, 23, 24 September 2015 in Trinity College Dublin. It will focus on the theme of dementia. This training event is aimed at PhD postdoctoral students and early career researchers.

Dementia Services Information Centre, Ireland The Dementia Services Information and Development Centre (DSIDC) has recently launched a new research report on Design Guidance for Dementia drawing on Universal Design Principles. This report will underpin new Guidelines for Architects involved in designing and retrofitting pre-existing domestic dwellings for dementia.The Dementia Services Information and Development Centre has recently published a report based on key findings from a national study of dementia in nursing homes Ireland.
The European Commission Joint Programme Neurodegenerative Disease research programme establishing a shared research vision across Europe, Canada and beyond.
Young Leaders Innovative Collaboration
We will enhance collaboration across research, healthcare, technological, and governmental sectors through a core group of liaisons serving as expert knowledge translators. We will approach professional societies, governments, NGOs, and leaders from different sectors to identify such liaisons. These liaisons will facilitate the exchange of ideas through a common language, innovative formation of multidisciplinary teams, identification of novel approaches, and efficient translation of best practices.
10/66 Dementia Research Group Population Studies Population based cohort studies of older people aged 65 and over living in low and middle income countries (China, Cuba, Dominican Republic, India, Mexico, Nigeria, Peru, Puerto Rico, Venezuela) to study prevalence, incidence and risk factors of dementia in LMIC.

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