Rights

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Actions that aim to: promote the human rights of people with dementia and those around them. Including but not limited to:

  • Promoting the respect, protection and fulfilment of all human rights of people with dementia and their carers; ensuring that people with dementia live in dignity and security.
  • Adopting a human rights-based approach to develop strategies, policies and programmes for those living with dementia and their carers.
  • Encouraging national and international institutions to promote the rights of those living with dementia and their carers and to raise awareness of the challenges they face.

Central American Multidisciplinary Confederation of Alzheimer’s (COMCAEDA)The development of programs for the defense of rights of persons with dementia.

COMMITMENTS
Country / Organisation Pledge
Canada Dementia Friends CanadaBring the Dementia Friends program to Canada in 2015 in collaboration with the Alzheimer Society of Canada and PUBLIC Inc. Based on similar successful programs originally launched in Japan and the UK, Dementia Friends Canada will help individuals, communities, and businesses better understand the needs of those living with dementia and what can be done to help improve their quality of life. This is being undertaken by the Public Health Agency of Canada from 2015 to 2017.
Costa Rica Developing programs to defend the rights of persons with dementia. This is being undertaken by the National Council for the protection to the elderly, CONAPAM, Costa Rica
Czech Republic Involving the Czech Public Defender of Rights in the development of the National Alzheimer’s Plan for the Czech Republic: the P-PA-IA strategy.
Dominican Republic The Dominican Republic to work with the church, to create an educational program to fight the stigma of dementia
Flanders Dementia Friendly Communities programme focuses on improving inclusion and quality of life for people living with dementia. A dementia friendly community is one in which people with dementia are empowered to have aspirations and feel confident, knowing they can contribute and participate in activities that are meaningful to them. Programme available in UK, Japan and Canada among other countries.
Germany Local Alliances for Persons with Dementia The focus of the “Local Alliances for Persons with Dementia” is on grouping and networking the potential held out by civil society, politics, administration and the health care system for better meeting the needs of persons with dementia and their relatives. By the year 2016, Germany is to have up to 500 such local alliances for persons with dementia located all over the country.
The Federal pilot programme funded by the Federal Ministry for Family Affairs, Senior Citizens, Women and Youth is intended to secure long-term improvements in the everyday life of persons with dementia and their relatives. The local alliances for persons with dementia are meant to exert a long-term influence on the immediate environment in which the affected persons live so that persons with dementia and their relatives do not become socially excluded but are accepted with consideration and understanding, in keeping with their needs.
Through this project, the Federal Ministry for Family Affairs, Senior Citizens, Women and Youth seeks to promote innovative ideas on the social inclusion of persons with dementia. There are no limits to this organisational form; the aim is to actively create networks and to develop existing ones further. The call is going out to: municipalities, associations, church communities, multi-generational homes, hospitals, doctors, cultural institutions, enterprises, senior citizens’ offices and self-help organisations. Until 2016, organisations, institutions and other relevant bodies can participate in an annual selection process. The locations are selected in co-operation with the Federal Laender. The funding period is two years, during which the work is supported financially with a total sum of 10,000 € resulting in a total advancement of 5 million €.
Greece A National Dementia Action Plan.
As part of the national dementia action plan in Greece, there are plans improve public awareness and reduce stigma.
Indonesia Public awareness campaign and the promotion of healthy lifestyles.Promoting human rights for people with dementia and care givers.
Japan Japan, as an originator of the Dementia Supporters (Dementia Friends) Programme, will introduce and share good practices of the program.Japan will also collaborate with nations that have the same program, to share experiences and information, and to measure the effect and benefit of the program.
Mexico Mexico is working to improve the legal rights of people with dementia.
Sweden One well known and difficult consequence of dementia is the more or less frequent use of restrictions and restraints in care. In 2013 the government invested in a two year program with the purpose to focus on alternative and restraint free methods in care, use of assistive devices to ensure independency, follow-up on how care for persons with dementia is locally organised and supervision to evaluate how good quality work is implemented. The final results from the program will be published later in March 2015.
United Kingdom Actively contribute to the EU Joint Action on dementia 2015-2018 through leadership of the work stream to develop dementia friendly environments.
To support the Alzheimer’s Society ambition to deliver an extra 3 million dementia friends in England.Continue to encourage the adoption of dementia friendly communities throughout England; and to consider the opportunities for relatives and carers to stay in care settings when a person with dementia is nearing the end of life.
Alzheimer’s Disease International (ADI) ADI overview of Dementia Friendly Communities projects worldwide. Launch 16 March 2015
Alzheimer’s Society Dementia Friends
Dementia Friends is the biggest ever initiative to change people’s perceptions of dementia. We intend to reach four million people by 2020 who learn more about dementia and the small ways they can help.Dementia Friendly Communities
The DFC programme develops evidence and standards for what it means to be dementia friendly in England, Wales and Northern Ireland. It supports communities that are working to become dementia friendly, promotes and encourages engagement with different sectors across society about how they can become dementia friendly and supports the development of excellence and good practice through the annual dementia friendly awards.
Alzheimer’s and Related Disorders Society of India (ARDSI) Dementia Friendly Communities Pilot Dementia Friendly Communities (DFC) pilot effort has been consolidated and feasibility in five more cities are being explored. Mainstreaming shall be effected in the ensuing years with localized strategies.
The Alzheimer Society of Ireland (ASI) The ASI advocates for the rights and needs of people with dementia and works at a political level to make policy makers aware of issues which affect people with dementia and their family carers. The ASI promotes the rights of people with dementia and their carers through policy submissions to government and national organisations.The ASI is committed to ensuring the voice of people with dementia is heard. To this end we facilitate and support the Irish Dementia Working Group. The members of this advocacy and campaigning group are people living with dementia. They have raised awareness at national and international conferences, spoken powerfully on radio and television and lobbied government and senior government officials on the needs of people with dementia. A representative from the Irish working group is also a member of the European Working Group of People with Dementia, where people with dementia from all over Europe come together to advise Alzheimer Europe on policy issues.

The ASI is committed to ensuring the voice of family carers is heard. We facilitate and support the Irish Dementia Carers Campaign Network. This group promotes the voice of carers at a national level, ensuring that their experiences and needs are understood and considered by policy makers. The aim of this group is for dementia carers to represent, raise awareness and campaign on the distinct needs of people who care for someone with dementia.

People with dementia have the same human rights as everyone else in society but these rights are often denied. The ASI is part of a working group on Human Rights and Older People. Other members of the working group include the Irish Council for Civil Liberties, Age and Opportunity, Third Age, PILA, Age Action, Active Ageing in Partnership and Active Retirement Ireland. The Human Rights and Older People Working Group was established on the premise that the member organisations share a common focus on human rights and older people.

Asociación Lucha Contra el Mal de Alzheimer y Alteraciones Semejantes (ALMA) Continue working with the Penaz (National Program for Alzheimer of the Ministry of Social Development of the Nation).
Collaborate with the installation of the problems of dementia as an agenda item of Public Health. (Day in Congress parliamentary project Alzheimer law).
UN Independent Expert on the enjoyment of all human rights by older persons As part of her mandate (Human Rights Council resolution 24/20), the Independent Expert is requested:
to assess the implementation of existing international instruments with regard to older persons while identifying both best practices in the implementation of existing law related to the promotion and protection of the rights of older persons, including older persons with dementia and gaps in the implementation of existing law;to take into account the views of stakeholders, including States, relevant regional human rights mechanisms, national human rights institutions, civil society organizations and academic institutions;to raise awareness of the challenges faced in the realization of all human rights by older persons, including those with dementia and to ensure that older persons receive information about those rights;to work in cooperation with States in order to foster the implementation of measures that contribute to the promotion and protection of the rights of older persons, including those with dementia;to integrate a gender and disability perspective into her work, and to pay particular attention to older women, persons with disabilities, persons of African descent, individuals belonging to indigenous peoples, persons belonging to national or ethnic, religious and linguistic minorities, rural persons, persons living on the streets, and refugees, among other groups;

In the discharge of her mandate, the Independent Expert will continue to receive information from diverse sources, including States, NGOs and civil society, UN agencies, regional and other inter-governmental organisations; communicate with States and other concerned parties with regard to alleged cases of violations of the human rights of older persons, including those with dementia; submit annual reports with targeted recommendations aiming at promoting the human rights of older persons, including those with dementia; undertake, at the invitation of governments, country visits to assess the situation of older persons, including those with dementia.

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